25th Annual Pediatric Ethics Conference- Precise But Not Perfect: Ethical Dilemmas in Pediatric Precision Medicine

April 26, 2024


This Conference will explore ethical dilemmas in the evolving field of precision medicine. Covering topics from justice and resource allocation to diagnostics, novel therapeutics, and system leadership, the conference aims to provide a comprehensive understanding of the ethical considerations involved in the advancement of individualized healthcare. Special focus will be given to ethical issues in "N of 1" trials, considerations for clinical and research use of genetic diagnostics and novel therapeutics, and to the patient and family experience of precision medicine through a discussion with a Parent Panel.

Learning Objectives

  • Review ethical dilemmas within precision diagnostics, including access to genetic evaluation and testing, ethnic underrepresentation in genomic databases, and cultural/language barriers.
  • Discuss a general orientation to N of 1 clinical trials and ensuing ethical topics.
  • Identify the basic principles and key components of precision medicine, providing a comprehensive introduction to its applications in healthcare.
  • Analyze and discuss the principles governing justice and resource allocation in the context of precision medicine, gaining a comprehensive understanding of the ethical considerations that guide equitable distribution of healthcare resources in this field.
  •  Assess and comprehend the innovative approaches and emerging trends in therapeutic interventions, demonstrating an enhanced understanding of cutting-edge developments that hold promise for advancing medical treatments.
  • List 3 factors to consider when prescribing high-cost novel treatments.

Learner Outcome

After attending this conference, participants will report increased knowledge to critically examine ethical challenges within precision medicine and the application of precision medicine principles in real-world healthcare scenarios.

Additional Information

Course Contact: 
Lainey Crawford- lainey.crawford@childrenscolorado.org
PDF icon Ethics Learner Packet 2024.pdf1.35 MB
Course summary
Available credit: 
  • 6.25 AMA PRA Category 1 Credit™
  • 0.60 ASHA
  • 6.25 Attendance
  • 6.25 NCPD
Course opens: 
Course expires: 
Event starts: 
04/26/2024 - 7:30am MDT
Event ends: 
04/26/2024 - 4:00pm MDT
7:30 amSign-In and Continental Breakfast
7:50 amWelcome and Conference Overview
Brian M. Jackson, MD, MA, HEC-C
8:00 amPrecision Medicine: What could go wrong?
Shawn McCandless, MD
9:00 amOverview of Justice and Resource Allocation in Precision Medicine
Lalit Bajaj, MD
10:00 amMorning Break
10:30 amEthics in Precision Diagnostics
Margarita Saenz, MD and Kaitlin Angione, MS, CGC
11:15 amNovel Treatments and the Complexity of Delivering this Care
Sue Apkon, MD and Christine Caneva 
12:00 pmLunch
12:30-1:30 pmPediatric Grand Rounds
Precision Medicine: How to build a program with the DNA to support equity and inclusion

Scott Demarest, MD, Alisa Gaskell, PhD, and Gregor Stoddard, JD
1:45 pmN of 1 Trials
Emily McCourt, MD and Roger Paxton, PhD
2:30Afternoon Break
3:00Parent Panel
3:45- 4:00 pmEvaluation and Adjourn
Children's Hospital Colorado
Aurora, CO
United States

Parking at Children’s Hospital Colorado

This conference will be held in person, on the Anschutz Medical Campus at Children’s Hospital Colorado, 13123 East 16th Avenue, Aurora, Colorado 80045.  Anschutz Medical Campus employees must park in their usual employee parking.  Parking accommodations for guests of Children’s Hospital Colorado will be in Lot 10.  You will receive parking instructions and a campus map prior to the conference.

If you are a guest at the hospital, please enter at the main entrance and take the elevator to the 2nd floor.  Then proceed to the Conference and Education Center.

Visit https://www.childrenscolorado.org/locations/anschutz-medical-campus-aurora/ for driving directions to the Children’s Hospital Colorado.


Katie Angione, MS, CGC
Senior Instructor
University of Colorado School of Medicine
Department of Pediatrics, Section of Neurology

Certified Genetic Counselor
Precision Medicine Institute

Susan Apkon, MD
Fischahs Chair in Pediatric Rehabilitation
Children’s Hospital Colorado
Professor and Vice-Chair, Department of Physical Medicine and Rehabilitation
University of Colorado School of Medicine

Lalit Bajaj, MD
Chief Quality Outcomes Officer
Children’s Hospital Colorado

Christine Caneava
Manager Novel Therapeutics Ops
Children’s Hospital Colorado

Scott Demarest, MD
Medical Director
Neurology Administration
Children’s Hospital Colorado

Alisa Gaskell, PhD
Scientific Director of Precision Med
Precision Diagnostic PDX Lab
Children’s Hospital Colorado

Brian M. Jackson, MD, MA, HEC-C
Associate Professor of Pediatrics
Section of Critical Care
University of Colorado Anschutz Medical Campus
Medical Director, Clinical Ethics
Children’s Hospital Colorado

Shawn McCandless, MD
Hospital Med Staff Dept Chair
Genetic Services
Children’s Hospital Colorado

Emily McCourt, MD
Hospital Med Staff Dept Chair
Ophthalmology Administration
Children’s Hospital Colorado

Roger Paxton, PhD
Research Operations Manager
Precision Medicine Institute
Children’s Hospital Colorado

Margarita Saenz, MD
Associate Professor of Clinical Practice
University of Colorado Anschutz Medical Campus
Division of Genetics and Metabolism

Gregor Stoddard, JD
Director Precision Medicine Admin
Children’s Hospital Colorado

Registration, attendance, sign-in and submission of the evaluation, including a written response to questions related to any change in practice that you may make as a result of learning that took place at this activity, are required for successful completion and receipt of the certificate of attendance. Claim only those hours you attend.

Medical: Children’s Hospital Colorado is accredited by the Accreditation Council for Continuing Medical Education to provide continuing medical education for physicians.

Children’s Hospital Colorado designates this live activity for a maximum of 6.25 AMA PRA Category 1 Credits ™. Physicians should only claim credit commensurate with the extent of their participation in the activity.

Nursing: Children’s Hospital Colorado is approved with distinction as a provider of nursing continuing professional development by Colorado Nurses Association, an accredited approver by the American Nurses Credentialing Center’s Commission on Accreditation. This educational activity for 6.25 nursing contact hours is provided by Children’s Hospital Colorado.


Other: A general certificate of attendance will be given to all other care providers.

Available Credit

  • 6.25 AMA PRA Category 1 Credit™
  • 0.60 ASHA
  • 6.25 Attendance
  • 6.25 NCPD


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